Kelly Trout is a registered nurse by profession.  She is also a leader of a small nonprofit organisation called the International WAGR Syndrome Association, and the parent of an adult with WAGR/11p Deletion syndrome.  This is an extremely rare disorder — fewer than 500 cases have been identified worldwide.  The primary features are Wilms tumor (a type of kidney cancer), Aniridia (absence of the iris), Genitourinary tract abnormalities, and intellectual disability.

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